Hi, I’m Lucy.
I’m the parent of a child with PANDAS (Paediatric Autoimmune Neuropsychiatric Disorders Associated with Strep). The journey can be overwhelming, but I’ve found that connecting other parents in the same boat, really helps!
This space is for parents navigating PANS/ PANDAS, I’ll offer support, things that have helped us on our journey, and real-life insights.
You’re not alone – together, we can help our children thrive.
Sharing all my notes with you!
I tried to think what would be useful to me if I was to start this journey from the beginning. The endless late nights googling, trying to fit all the PANS PANDAS puzzle pieces together.
So I created Parenting PANDAS Sharing Notes. I have complied all of my notes from this wild journey so far. It’s in 27 easy to read pages, and it includes handy links!
10% of the sale goes to the PANS PANDAS UK charity.
The Environment
My next document is all the environmental changes that have actually helped my PANDAS child ✨All in one place – so you don’t have to Google, guess, or go broke figuring it out.
I spent months (and hundreds of £££) speaking to professionals, testing things, and trying to figure out what actually makes a difference.
I made the thing I needed at the beginning.
✅ Clear, honest info
✅ Clickable links to tools + products
✅ A prioritising checklist so it’s not overwhelming.
This isn’t about doing everything perfectly. It’s about understanding what’s worth your energy, seeing real change and reducing the toxic load.
1-1 Parent Support Call
Feeling lost, overwhelmed, or just desperate to talk to someone who gets it? I’m a full-time carer for my daughter with PANS/PANDAS, and I know firsthand how lonely and confusing this road can be.
This isn’t medical advice, but in our 1-hour video or phone call, we’ll talk through:
•Our experience with symptoms, clinics, and treatments
•What’s helped us day-to-day (practical tips and emotional survival)
•Where to find support and reliable information
•Anything you’re feeling stuck on or need to talk through
You’ll leave with clarity, connection, and a few next steps so you don’t feel so alone.
You don’t have to do this alone. Let’s talk.
Join my newsletter
I’m not going to lie, I don’t have a set date that I send these out – it’s very as and when – inbetween my daughter flaring like a firework.
But just know, at some point, you’ll be getting little golden nuggets of info that I’m learning along this journey – straight to your inbox.
You’ll also get the reassurance that you’re not alone, and if no one else in the world gets it, I do!
Listen to my interview on the PANS PANDAS story podcast
Lucy McDonald & Jo Joyner interview top Drs and PANS PANDAS specialists on their podcast.
I was absolutely honoured to be ask to go on it!
I speak about our whole journey and the challenges we faced as a family.
Buy me a coffee
Just popping this in here – If you like what I share, I always really appreciate a coffee!
Parenting PANDAS 